Thank You so much to everyone who attended Brunch For Bob or Full Moon Yoga. The fundraisers were a huge success! A special thanks to Ashley Forgione for spearheading these events. Also a huge thanks to the owners of the Corner Cafe Jamie and Mary as well as Erin for hosting the events. Hope you all had as much fun as I did.
Amazing Documentary Alert!!
Hey Guys!
I encourage everyone to check out this crazy, bad-ass, awe-inspiring documentary made by a friend of mine. It is about his battle with ALS for the last 10 years. This film has won many awards already including the Audience Award at the Tribeca Film Festival. Patrick O'Brien, who this documentary follows, is one of the most creative and determined people I know. This film was released yesterday on iTunes as well as Amazon. Please check it out!!
itunes: https://itunes.apple.com/us/movie/transfatty-lives/id1054260584?ls=1
Amazon: http://www.amazon.com/s/ref=nb_sb_ss_i_1_10?url=search-alias%3Daps&field-keywords=transfatty+lives&sprefix=transfatty+lives%2Caps%2C148
Thank you Nola family and friends!!
Thank you so so much for everyone who went to he pedicabaret last night! I really wish I could have been there with ya'll! Hope everyone had a blasty A huge huge thanks to Brooke Trout and everyone who helped put the event on and the Hi-Ho Lounge for hosting the event. See you guys at Mardi Gras!!
ALSTDI Leadership Forum
On Friday November 13th I will be attending the ALSTDI Leadership Forum and I could not be more excited. The forum is free and open to the public. It will be a great opportunity for anyone who wants to know what is going on in the world of ALS research. That evening there also will be a screening of the incredible documentary by Patrick O'Brien TransFatty Lives. If you would like to go please sign up at ALS.NET. Hope to see you there!!
Finally feeling a bit better! YEBBADEBBADOO!
After almost a month since my first feeding tube was put in I am feeling better. I was able to enjoy a great Halloween in with my beautiful wife Casey and many of our good friends.
G-Tube Success
I had my feeding tube replaced yesterday in a new location. Despite the fact that I now have two holes in me I feel significantly better than I have for the past 3 weeks. Thank you everyone for your well wishes!!! I will be leaving the ICU this afternoon and heading home.
G-Tube take two......
Hey guys,
Unfortunately the doctors messed up my g-tube placement two weeks ago. The tube has been rubbing up against my ribs and I have been in an excruciating amount of pain. On Monday I will be going back in to MGH to get this tube removed and a new feeding tube put in in a new location. Thank you all for your support and a big thanks to those who have been doing recurring monthly donations. This is incredibly helpful as medical bills aren't cheap.
