Bobby and Casey had a blast at the Count Down To A Cure New Years event in Boston! Thank you for everyone who put this together. This event benefited two of my favorite ALS organizations, ALS TDI and Compassionate Care ALS.
Polar Plunge!!
Bobby had a blast at the Plunge for Pete shortly after Christmas. Thank you to the Frates family for inviting us to join in your amazing event. Thank you for everyone who jumped in the water!!
Red Sox!!!
Last week I was lucky enough to get a private tour of Fenway with my caregiver, Aly, and my sister, Bonnie. It was such a great tour of the home of my favorite baseball team! Thank you so much to Jim and Ann for making it possible. Go Sox!
Thank You!!!
Thank You so much to everyone who attended Brunch For Bob or Full Moon Yoga. The fundraisers were a huge success! A special thanks to Ashley Forgione for spearheading these events. Also a huge thanks to the owners of the Corner Cafe Jamie and Mary as well as Erin for hosting the events. Hope you all had as much fun as I did.
Amazing Documentary Alert!!
Hey Guys!
I encourage everyone to check out this crazy, bad-ass, awe-inspiring documentary made by a friend of mine. It is about his battle with ALS for the last 10 years. This film has won many awards already including the Audience Award at the Tribeca Film Festival. Patrick O'Brien, who this documentary follows, is one of the most creative and determined people I know. This film was released yesterday on iTunes as well as Amazon. Please check it out!!
itunes: https://itunes.apple.com/us/movie/transfatty-lives/id1054260584?ls=1
Amazon: http://www.amazon.com/s/ref=nb_sb_ss_i_1_10?url=search-alias%3Daps&field-keywords=transfatty+lives&sprefix=transfatty+lives%2Caps%2C148
Thank you Nola family and friends!!
Thank you so so much for everyone who went to he pedicabaret last night! I really wish I could have been there with ya'll! Hope everyone had a blasty A huge huge thanks to Brooke Trout and everyone who helped put the event on and the Hi-Ho Lounge for hosting the event. See you guys at Mardi Gras!!
ALSTDI Leadership Forum
On Friday November 13th I will be attending the ALSTDI Leadership Forum and I could not be more excited. The forum is free and open to the public. It will be a great opportunity for anyone who wants to know what is going on in the world of ALS research. That evening there also will be a screening of the incredible documentary by Patrick O'Brien TransFatty Lives. If you would like to go please sign up at ALS.NET. Hope to see you there!!